. Blake had another good day!! Many improvements, he is off oxygen and his percent is at 86, all the better it will be for now. Had a chest x-ray and an echo on his heart and they were both good.
This surgery was just to help him until he gets big enough, has a few body structure changes, to be able to do the other 2. He will have them in about 4 months, barring any problems, then the other 6 months later. We call it practice for mom and dad!
Riley continues to do very well! At 8 weeks old she is now wearing newborn size and they fit. She is a little at odds with Blake gone, very fussy, but then he talks for her. As odd as it sounds, yes, Blake did wake them up if Riley was crying. She still can't cry, (sound) so with Blake in the hospital my daughter sets an alarm 2 hours after she feeds her, then every hour after that. So far it has been ok. Riley should be done with all surgeries. She has seen the cardiologist once a week, but after Monday it will go to once a month for 6 months. She also sees the ENT once a month as well. So far they are only saying her voice box has a weakness and only time will tell.
And 21 month old Aidan is so out of sorts. What did you do with my Blake! When they get in the car in the mornings to go to school, he is so upset there is only one other car seat.
Hopefully normal will happen soon!!
