I need help with my son

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Casnos Minis

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haven't tried please let me know. Noah has been seeing a therapist(sp?) for a year now and he was seeing another guy, but he wasn't helping any so we stopped going to him. You see Noah has ADHA with possible pediatric bipolar. He has severe out burst and then he's fine. I haven't been able to get him to sleep in his own bed since he was a baby. He would never stay in his bed and I'm not one of thse moms that can just let their baby cry. He's now 5 and weighs 55 pounds. I've tried reading to him untill he falls asleep (takes 3 hours), letting him fall asleep in my bed and move him (wakes up and screams), smae if I let him fall asleep on the couch. We've trie his own bed in our room then gradually moving it into his room (per order of the doctor), NO WAY NO HOW!!!!!!!!! I'm at my wits end. My hubby and I can't even go away for a weekend together because he can't sleep through the night. He has nightmares and night terrors. The doctors don't seem to care and just keep telling me they don't want to put him on anyhting. He is on Buspirone and Gaufacine (sp?). He takes 6 pills a day (2 in the am, 1 at noon, and 3 at 6pm).

I've tried amethyst in his room, he has xmas light for the dark becasue he deathly afraid of it. I've done his room the way he wanted it hoping that eh would like to sleep in it, but NO. We have another appointment with his therapist in the 22nd and I'm hoping we can get some tests done on his sleep problems and his other problems. If anyone has any ideas I would love to hear them.

Christy
 
Christy you got big problems. I know a lot about ADHD if that is what you mean and nothing about the rest of it.

But having gone through the ADHD I can tell you that there is a great chance your son has been misdiagnosed, which is not hard for a local dr. to do who is not an expert in this field with a battery of experts for consult, especially trained in this and other behavioral problems. Unfortunately an untrained or uninterested doctor, (pediatrician or not) will use ADHD as a catch all for all behavioral problems from the spoiled little kid that wants his way to the neighborhood bully to the truly eflicted child. Just because the doctor is "nice" and you may like him doesn't mean a hill of beans. You need another doctor, a specialist, the very best.

The first thing I would do is to start over from scratch and not mess around locally at all and go to the largest most equipped children's hospital in your state and have the proper tests run. The proper testing takes many visits, not just one or two. You need the best specialist you can find.

All these medications have to be adjusted and changed probably several times to achieve "normal" behavior and many have ill side effects, which Noah may be feeling so that is another issue that has to be addressed. Did you know that some can also cause night terrors? Yes' as well as improper diet. Been there done that one too.

I'll try to find a link that can help you and post it back here.
 
Thanks Marty. I do mean ADHD Noah is just like my brother was when he was younger. He is a knowledgable doctor. The best Children's hospital is Boston's Childrens, I am going to make some phone calls tomorrow. His meds have been adjusted every month and the ones he's on are at the limit that the doctor would like.

Christy
 
First of all i admit that I know nothing about ADHD. I would really be worried about all of the medication hurting his development.

He could just be feeding off of your anxieties. If you are worried or stressed that will make him the same no matter how young he is. if sleeping in your bed or not puts that much stress on the both of you, then i say, Quit worrying about it! it really is not a crisis. You think it is so therefore he thinks it is too. i say if you can get him off of this medication then you can start to pick your battles. Start with something smaller to establish who is boss here. Never do it in anger and be secure and confidant about what you want. never withhold affection or love.

He is pretty dug in to this sleeping with you thing so it will be harder, but it will happen. He will someday want his own room to himself. You could start doing things in his room that may make him think you will be invading his space and will become more possessive of it. Once he starts to realize that he wants his own space he will then want to sleep in there. Give it time. Habits are hard to break and don't worry over it.

Just my opinion.

Shelia B.
 
Christy,

I've never been a parent so I'm not going to presume to know anything about what you're facing, but I just wanting to say that I'm sorry and I'll keep you in my thoughts.
 
Christy,

My son was diagonised with ADHD about 4 yrs ago. We started him in the meds and he turned into a completely different child. One med, he was like in a coma, the other he was flipping out, crying for no reason, and attacking his sister and me.. And for the life of me, I can't tell you the names of the meds. But he did sleep with us, too for a long time. Then we put a sofa in our room and gradually moved him to it.( I think he was 6) He is now 12, no meds and sleeps in his own room. He still has some issues, but I , myself just work threw them with him instead of meds. They may work for some, but not Jamie.. His system just doesn't do well with them.(1 benydral puts him out like a light)
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If you don't mind me asking how long has he been on these meds? I did some looking and please if you get a minute, check them out. Both of his meds can cause insomina. I truely take all side effects to heart.. Maybe the meds are compounding his problem? I am no dr, just trying to help.
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I know that this can be very difficult..

http://health.msn.com/medications/articlep...entid=100060089

http://www.medicinenet.com/buspirone/article.htm

Just a thought..
 
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One med, he was like in a coma, the other he was flipping out, crying for no reason,

Boy have you got that right. A lot of these meds are horrible.

My poor little Michael suffered with the meds thing and finally, what I did was work with him, work with his diet, (no sugar for starters), and then we were able to give a very low dosage of ridilyn. A GREAT doctor is your key, not just a good one.
 
One med, he was like in a coma, the other he was flipping out, crying for no reason,

Boy have you got that right. A lot of these meds are horrible.

My poor little Michael suffered with the meds thing and finally, what I did was work with him, work with his diet, (no sugar for starters), and then we were able to give a very low dosage of ridilyn. A GREAT doctor is your key, not just a good one.
Marty,

I forgot to mention diet. I watch Jamie's sugar intake and pop to this day. If he has to much sugar, like at school when they have a party, he is a miserable monster, and we all pay heck. The one time he had a 16 oz of Mt dew from a lady that he was mowing for, dang that hit him like a bomb.. Diet is also a key in helping these little ones with problems..
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Christy,

I visited your website and your children are beautiful! I'm so sorry Noah and the rest of you are going through so much. Everyone has given some great advice. There's nothing more important than our children and it hurts so much when they suffer from anything. I do know, from experience, how hopeless and helpless you feel. It was extra hard when I had very little emotional support from family and friends. Most, just blamed me for my son's behavior and oftentimes, told me he didn't act like that with them. But, I was a stay-at-home mom and "knew" something was "different" when he went from a calm, obedient child to a child that was literally "ballistic". Whew!

Anyway, I tried many things and did everything I knew to do for him. I read a wonderful book by Doris J. Rapp entitled, "The Impossible Child". This really opened my eyes about lots of stuff and what to look for. I took him to an allergist and found that he was sensitive to most of the foods that he loved. (Isn't that always the case!) That helped and in time, he outgrew a lot of the sensitivities. Sometimes when we're in contact with something we break out in a rash, etc. Some of the things we eat or come in contact with in the environment affect us in a way that causes us to act "different".It's not always hyper and aggressive; it can be sleepy or listless. Inability to pay attention. I can remember my son would become so sensitive to "something" that he simply couldn't stand to be touched. He would lose his breath laughing! In my mind's eye, I can still see how purple he would get under his eyes when the aggressive and strange episodes would occur. He couldn't help himself and desperately needed me to get help for him. The word, "no", during these times would be like adding gasoline to a fire! I thank God for giving me lots of patience and for my precious son.

The road ahead for you guys isn't going to be easy; but, we're all here for you and offer our prayers and support. God bless.

Joan
 
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My niece has the same issues as you but she has 3 children with it, 1 they cant even tell her what the diagnosis is because she displays so many.

I'm on buspirone 60 mg 4 times a day, it is a VERY old drug mine is for anxiety, I'm sure there are much better drugs than that to put him on. I just cant handle the newer drugs most are once a day and my body doesn't do well with 1 big dose.

If you want to pm me your email I can have my niece email you back it may take her a while because all the kids are home on Christmas break and she doesnt have much time for the computer then.

I know they have issues getting the 1 child to sleep they used to push him around the house in his stroller until he fell asleep, now I'm pretty sure they rock him.

I'm with Marty you need a top notch Doctor, my niece went through quite a few until she got one who knew what was happening. Good Luck, Kathy
 
Morning Christy,

I do know where you are coming from both with the ADHD and the bipolar.

My experinces with ADHD are all with children who have been diagnossied via independant Physicatrist through the testing that Marty is talking about ( it does take a long time privately was about 2 months from start to finish) and many visits- and pretty expensive -at least here- some school board offer parts of the testing but not the whole battery of test and the wait list can be long)

One of my children had ben sleeping in my bed since they were age 2 until age 6 when it became impossible for me to function any more with them in my bed. My child was around 6- so I picked a long weekend where I made sure that all activites were as possitive as possible but not over stimulating and put my child to bed in their own bed- that started a huge screaming, yelling, kicking pounding on my door yelling swearing fest from them- who eventually did go back to their bed took all three nights and boy I had to be prepared mentally for it- but once I started it I knew I couldn't go back( I actually had to hold my door closed for a bit) but we did have sucess- and boy did I feel guilty- but all was sorted out.

That is my only suggestion for sleep issues-

As for misdiagnossis- non of us on this board are your sons Dr- and have not seen him for treatment so we can not say weather the diagnosis is proper or not- just caution you that some times due to the fact that the proper diagnostic tests (the ones Marty is talking about and are also usually done seeking the information from your childs school or day care) are not run, the diagnosis could be wrong.

And the following comes from my personal experinces only.

Medications- If you and your sons Dr- have choosen this path please remember that there are many different types of medication out there, and they work in different ways some times it takes some fine tuning and adjusting to get it right for your child, and you may find the right dosage now but it may not work later down the line and you may need to start the process all over again. I am familiar with the reactions you have mentioned, and also would like to point out that medication trials because of the reactions in the brain can show other issues at an earlier stage or show other issues falsely- which is not easy at all to navigate through.

Also please do not let the stigma of " your child is on that" "You are a bad parent because you medicate your child" " Your child was not diagnosied properly" " You are a bad parent because you expect medication to parent your child" the list can go on and on-

I allways love to respond- If your child needed asthma medication to function would you give your child the medication or sit there and watch them suffer? I sure do not expect the local busy body to be telling the guy down the street that he shouldn't be taking his heart medication.

Also a word of caution- if medication is going to be part of the aids that you will be using for your son- please remember it is an aid and should not be withdrawn ( except by Dr orders) quickly- many children use this as a strategis to help them stay on task and if taken away to early, or with out coping strategis put into place it can hurt a childs sucess.

From what I have learned that of the many symptoms that ADHD presents not all are present in each child and they will present at varying degrees. So I have found with my personal experince is that each child treatment is taylored to them- so if you are going to use the medication please don't forget there are also other aids available- and this is where the testing Marty was talking about is important- they should also come up with suggestions that will fit your child-

example -

Some children do not react well to any of the medications out there( or they choose to find a alternative path) which means lots of planning ahead to schedule your childs day around there attentive and inattentive moods, building in postive experinces as much as possible.

Some childrens medication might wear off at a certain times- so if it is possible then at this time you schedule in say physical activity( walks, organized sports, gym time-)- until the medication kicks back in.

Some children suffer sever weight loss when on the medication- do to lack of appitite - so parents then have very late meals at the end of the day when there appitite rebounds- or during medication holidays parents basically make sure the fridge is well stocked, or that a nutritional supplement is availbale.

Also- where the Report is concerned it will also help with getting your child additional help in the school- and your learning resource teacher should have some suggestions for you to help with the issues that crop up.

Another stategy is to find an activity outside the school that your child can excell in and use as an ego booster- often it is sports, but there are many art classes, social groups Boy scouts, Girl Guides, 4- H that can and do help with self estemme building ( which can be a very big problem down the line)

There are many help groups some might even have the testing at reduced rates, or organized activity groups for the children along with the latest and up to date info- so please check around you if anything there will be a parent that has or is going through what you are going through and some times another ear or a fresh incite makes a world of differnce

ADHD - I can not say how often it is misdiagnosied or incorrectly diagnossied- or correctly diagnosied- BUT I can say that from what I have learned that - basically ADHD has many symptoms that are also seen as the early stages of other issues, including mental health issues. By no means am I saying that people with ADHD will have further issues, but it is a cue for the parent to keep track of and watch for as I see you are concerned with.

The family-- Sometimes (often) as parents we get into this cycle of taking care of the child that we forget to take care of our selves and our relationships around us, we also must be "well rounded" parents as well as adults to help our children through their issues. So don't forget to take a moment out for you time and then a moment out for your couple time - and if you have other children some for them too!

O.K. I wrote a novel- I hope you can find something here that will be of assistance if not oh well some one might
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Its a long journey {{{{{ HUGS}}}}}
 
I have no clue what to tell you...but did want to tell a story about misdiagnosis....my niece from the time she was a toddler was considered to be a "difficult" child...did not like to be touched, would scream when you put her to bed, couldn't stay focused...she went to tons of doctors, they all said the same thing...bi-polar, add, and a few other fancy words...they said it was a classic case and they see it all the time. For over 15 years she was on different meds, nothing seemed to help much. When she was 19 she was finally properly diagnosed with the help of an extensive sleep study...she is Narcoleptic..it seems the poor thing was so tired all the time, even though she would sleep alot. She is now on the correct meds to help her and has been for 3 years...the change is amazing...my whole family, especially her Mother feels guilty for putting her through all those meds which were not healthy (they were mind altering drugs). No one ever imagined that her problem was this. You would think that someone who has this would sleep like a baby, but that is not the case...night terrors and insominia are common with this disease...could be worth a shot to check into it...you never know! Wish you the best of luck.
 
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I just want to say good luck. I dont have too much experience, but I can sympithize with you. I had night terrors as a kid, and sleep walking and hallucinations and horrible head aches. But mine was due to trama. My parents thought I had a brain tumor! Thank goodness I grew out of it.

Maybe a pet to sleep with. Like a cuddly cat or dog? Just for him. I know my little dogs sleep with my girls, and I think it helps them be less afraid, because they know they have canine backup.

I hope you get some answers and peace of mind.

My younger brothers were very hard boys to raise, and now that they are young men, I am shocked at how well they are doing, and the great choices they are making. I wish you and your family the best !
 
I don't know anything about what you are going through. But I have a question from an outsider's prospective. Would your son sleep in his room if one of you were in there with him? If he would, then maybe after a week or two of sleeping and waking to you being there, maybe you could just one day leave in the middle of the night. And then I would gradually wean myself from being in the room with him so that he didn't know if you would be there or not until you were not needed in the room any more.

Like I said, may be a crazy idea and I definately have no knowledge of what you are dealing with other than my best freind being ADHD. But it would seem to me that the first step is to not take his security blanket away from him. That blanket is currently you, his parents. Get him comfortable with the room and the night in the room, then slowly wean him from his security blanket.

Laughs. I am thinking just like the gradule weaning that I do with the horses. Seperate for a few hours but let the foal be in sight of mom, then increase the time apart, and then one day they just don't go back together. Same with your son. Maybe start with reading him his bedtime story in the room and in the bed and then go to where he likes to sleep. You know, little baby steps to get him comfortable in his own bed.

And of course continue to seek the best treatment for him that you can. You are a very GOOD parent to be so concerned and to be working so hard at trying to find a good solution. (((Hugs)))
 
Christy:

Over the years, we have had foster children with several issues, including ADHD, bipolar disorder, fetal alcohol syndrome, post-traumautic stress, obsessive compulsive disorder and oppositional defiant disorder.

Meds can help, but the best advice comes from Marty. Take your son to a specialist.
 
[SIZE=14pt]Thanks everyone for you concerns and opinions, ect. I will look at everything you have all said agin later when no one is awake so I can concintrate on what everyone has said and looka t all the wab sites everyone has given me. I started to cry readin alot of them, just because I truely feel that you are all family. I hadn't felt that way on here yet, except with a few of you. I'm glad to see so many that are willing to help me through this.[/SIZE]

Christy
 
[SIZE=14pt]I just read them all over again entirely. I am going to be making some phone calls tomorrow to Boston Children's and Bay State ( it's a very good hospital and closer than Boston, but I am calling both). I've seen what alot of the meds can do. as I said my brother has ADHD and my mom tried several with him until he decided he didn't want anything as a teenager. He doesn't get alot of sugar and gets lots of fruits and veggies in his diet. I have kept track of what he eats and except for the sugar nothing really affects him.[/SIZE]

Thanks again everyone.

Christy
 
I have not posted as I have absolutely no experience with ADD or ADHD.

I just wanted you to know that you are not alone. I hope you can find answers to your questions and find some help for your family.

Let us know what you find.

(((())))
 

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