"Is there any documentation currently available regarding the number of dwarves born in the US in the last year? I know the answer is probably no but thought perhaps you have been able through your call for help with this study to have some kind of ball park figure. Thank you so very much for the research you are doing and for your willingness to share your knowledge with us."
Backwoodsnanny,
Someone asked a similar question on another thread, and no there is not a single ounce of documentation about any numbers of the dwarfs not only in the US but in the world. So the number of dwarfs that I have accumulated is not at all able to be used to calculate or project the total number of cases that might be occuring. The reason is that so many people are out there saying they have a dwarf but are unwilling to give any info about it. However, they still want work done to find a test so they never have one again.
My calls for help usually result in a small number of individuals that get the "big picture" that are willing give me the things needed, ie blood samples of dwarf and parents, pictures of all three, and pedigree info.
On the Best of the Lil beginnings forum right now there is a thread with info about all I need for my research and people that frequent this forum often STILL ask if anything is being done and is there anyone doing research, I just dont get it.
Most of the others will tell me they have one but are only willing to give me a picture, which is worthless for genetic research, or just a blood sample of the dwarf and no other info, especially no pedigree or parent samples. Unfortunately those "random" samples I get, go into storage to be used AFTER I find the gene, mutation and a test, to confirm their type. So they are not able to be used in the pilot study.
And even after my call outs for samples, I continuously see people on the forums say they have dwarfs but are not any of the people that responded to me, so sometimes I just wonder, how many people whine and cry about the problem and say that something needs to be done, then when they have a chance, ooohh, well, dont include them, they dont want to have anyone know who the dwarf's parents are or whatever.
Sooner rather than later we will know a whole lot, and tests will be out there. So just realize if the test is out there and people dont have their horses done then you might wonder why, because I doubt very highly that the registries are going to require any dwarf tests when they come out. I really think they will
try to take this as slow as possible.
John
