Thank you so much, Kim, for posting and everyone else for the nice thoughts.
I am home now and doing pretty good.
This morning was really, really bad though. They gave me an oral pain killer (doraset (sp)) but it made me feel really sick to my stomach and then they took the epidural (which blocked some of the pain, but not my ability to move) our about an hour later. There were a few hours where the epidural wasn't blocking the chest tube pain at all and it just defies description about how much it hurt. I was crying and begging the nurses to get the doctor in to take out the tubes and calling H every 5 minutes to see where he was on his way to the hospital.
After the two tubes came out (at the same time), it still hurts a lot but is in the realm of possible to deal with, especially with the medicine they gave me that I can tolerate (oxycodone -- not as strong as doraset but doesn't make me sick). Just does make me really, really tired though so I think starting tomorrow morning, I will try just one of those (vs. two) and Tylenol every 4 hours. Would be the same amount of Tylenol but 1/2 the narcotic.
In the morning, will call the surgeon's office about seeing him either this Wednesday or Friday. He should have prelim results on the tumor by then. He is hoping it was a carcinoid (sp) which sounds bad but as I understand it, is a slow growing tumor that ranges from benign to malignant. The initial biopsy was not malignant, however, the Pulmonologist felt she had not gotten a big enough sample and that it really was.
The PET / CT Fusion scan I had done though showed it was not anywhere else in my body so no matter what it comes back as, this surgery did get it all out. They took the upper left lobe but not the entire lung and didn't have to do a "sleeve" to the lower lobe. Because of the tumor's location and the collapse of the lung around it, it was reducing my total lung function to 65% (because of the location, not because 35% of my lung was this tumor / collapse), so in time, I really should feel a whole lot better.
I wish they did this laparoscopically (sp) but they didn't. I have 17 staples and 4 stitches, and a patch where the chest tubes were. The surgeon will take the patch off on Wednesday if I get to see him then, and if not then H will. It is hard because until the patch comes off, I cannot get it wet so to take a shower, H have to tape this plastic wrap over it and basically help me take the shower.
For now, I'm supposed to walk a few minutes every hour that I'm awake and do these breathing exercises on my own and with these two devices they sent home with me. I think I use the devices 1wk, then throw them away. Right now, I am not able to breath in nearly as deeply as I should (one device measures that) but that should get better each time.
At this moment, I feel pretty good in terms of pain (30 minutes ago took 2 oxycodone) but just so sleepy. I only ate like 2 saltines, a handful of grapes and an egg the whole time at the hospital and slept maybe 5 hours. So that plus the oxycodone and I am one sleepy girl!!!
Jill