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TN Belle

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Well, my first update is nothing new really. My first radiation treatments went well, lasting only a few minutes and there is no pain involved. The making of the scans and face mask took five hours or so and that was hard, but I don't have to do that again. They stretch this warm plastic over your face and attatch it to a table, so I can't move at all and they can align the treatments to the same area each time. I will have five areas on my head about the size of the palm of your hand where I will lose my hair in a week or so. I went ahead and cut it all off this past weekend so that I could donate it before it fell out. They needed at least eight inches, but since I cut it so close to my head, they actually got ten inches. I am giving it to "Beautiful Lengths", the one that was on Oprah and Hilary Swank has been promoting, wigs made just for women with cancer. I have donated to "Locks for Love" before and they are for children.

Chemo has been okay too so far, been on it since Wednesday and taking nausea pills with it and so far haven't felt any different. But in addition to steroids to combat brain swelling and seizure meds too, I feel a little spacy now and again and very clumsy, but okay. I hope to feel well enough this Friday to get some shopping done before the worst hits me. I went hat shopping too and that was hard to do. Because my scalp will be so raw, I can't just wear any old hat. It will have to be soft and fairly loose. Plus one of the radiation fields covers a portion of my ear and after two sessions, it's irritated enough that my glasses bug me, so I can't wear them much longer either. I can't just wear any old tobogan or baseball cap like regular chemo patients can. I did find a really nice holiday green chenille bucket hat that will work great and I can put some holiday pins on it or a pretty ribbon around the little brim. I just love it, you can kinda flip up the brim on the front so it looks like the old tv character Blossom or even Giligan.

I will try to keep posting when I can, but if not anytime soon, everyone have a wonderful, bountiful, and very thankful Thanksgiving. Give your family and horses a big hug!!
 
I am keeping you in my thoughts and prayers! You're a strong person and that is going to help you and your family through this time, and onto better days.
 
I am also keeping you in my thoughts and prayers...and am glad to hear its not going so bad so far...good luck!
 
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I'm so sorry that this is happening to you!

Sending love and prayers your way!!!!!!!
 
thoughts and prayers going out to you! you are plowing ahead with a great attitude and that will go a long way in your recovery. i am SO proud of you, much like i have been proud of my husband over the past 21 months. you go girl!!!
 
Here are some (((HUGS))) to you during this trying time.

You are a giving person to go ahead and cut your hair and donate it to help someone else in need.

Very sweet of you, I dont know that most people would think to do that, but now I will remember it...

Keep your head up and keep the faith and things will get better.

Have a great Thanksgiving...
 
It's good to hear from you and know it's going OK so far.

I will continue to keep you in my heart and prayers......

Have a wonderful Thanksgiving.

I'll look forward to your next update.
 
Glad to see that the treatments are not too hard on you. I have been there, done that since I'm a 2 time breast cancer survivor. First time I did the chemo, radiation and had a stem cell transplant. The second time did 4 rounds of chemo only.

I know that you can do this and that you will do just fine. You are in my thoughts and prayers. I know you will find that wonderful, just perfect hat.

Post when you can.
 
I am sorry you have to go through this!
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I also went through Chemotherapy and Radiation treatments in 2005 for Breast Cancer. Although with my treatment I had finished my Chemotherapy within weeks of starting the Radiation treatments, so with mine I had already lost my hair (I shaved mine before it feel out). I cant imagine having raw areas on my head..It was rough enough having it under my arm and chest area..The only tip I can think to give you is use LOTS of Alo-vera gel.(I had a plant & Gel with no additives) I used it before treatment and after treatment from the start of the treatment and I actually had very minimal scaring.
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even the techs and doctors were impressed with how well I did. They also have Radiation treatment Lotion you can use too, however I found it was not nearly as soothing as the Plain Old Alovera was.
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As far as hats I wore Chemo Caps that tied in the back like Bandanas and I also wore the slip on ones that were not tight. Those types were free from my Cancer Navigator. But I dont know if in your case you could wear something like that with you head being sore. The slip on ones were pretty loose and breathable too. Mine was in the summer time so that was important for me. I never wore a wig at all. Never felt comfortable in the one I had and it itched like crazy when I wore it for more than a few minutes.
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Well good luck with your treatments! Hope all goes well.

Oh, and I took Haloperidol for Nausea after Chemo Treatments which worked pretty good. I would feel good for the first and second day and start to nose dive on the end of the third day and all day the fourth day, then would start to feel better on the fifth day and two weeks to recover then the next chemo treatment would start. However, with each treatment I noticed that it took longer to recover after each treatment and the radiation was the same way only not physically ill...just fatigue...

If you would like just email me if you have any questions( I kept a complete daily journal/log) or just want to vent...please feel free....

Best Of Luck!

Jeri
 
You go girl!!
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This must be so terribly difficult for you, but we forum friends will be here for you, cheering for you and sending our prayers for your recovery.

I wonder if a soft scarf would be comfortable for you? The hat sounds great, you should post a pic (even if you don't want to be seen IN the hat, just the hat itself.)
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My thoughts are with you too.....keep up a great attitude....that's the only way to do it
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~kathryn
 
I am in awe of your courage and spirit and my thoughts will be with you as you traverse this part of your path through recovering from your illness.

Thank you for sharing your story, and I will wish the best for you. May your discomfort be minimal, and your recovery complete.

(((hugs)))

Liz M.
 
I am praying for you...how about nice silktype scarfs for your head...

Like these Head scarves

Maybe they would be more comfortable? Not sure though. I'm wishing you the best...(((HUGS)))
 
Glad to hear the treatments aren't too bad so far. I pray for you daily. Have a happy and blessed Thanksgiving.
 
I am so glad to hear the treatments are not hitting you bad, and hope everything is going to go just as well in the future with all your treatments. Keeping you in my thoughts and prayers for a good recovery. (((hugs))) Corinne
 
Somehow I just now saw this thread..please accept my sincere wished for strength (I see you already have that), and comfort during this trying time in your life..

The way you talk I can tell you are a good strong fighter
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, and wish I could find something to help your head..what about like that Silvadene cream they use on burn patients..would a real Aloe Vera plant help you? I will send you one if you pm me your mailing address. I have a big one that is always making babies..just let me know.

Bless you, more and more I am seeing that my problems are stupid and simple compared to what some are enduring!

Maxine
 
For those that don't know Misty, she is gorgeous~ absolutely beautiful. Misty you will look fabulous in really short hair! And cute in your new hat too.

I"m so glad your treatment has not been bad and many people have these treatments and don't react badly at all so with your possitive attitude I'm guessing you will come out of this really good. I can't wait until you are better and can get Twix and his buddy in your yard! What a way to heal, how great that will be. I"m not far if you need me for ANTHING. I haven't called because I don't want to bug you or wake you up if you're resting.
 

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