REO
Well-Known Member
I'm going to paste here what she told me. I'm devastated.
Robin, my dear friend,
This is what is going on...I owe this to you. You and Karrel have been here for us since the beginning.
The vein can not be removed, is essence there is nothing that they can do for me. By patch and repair they mean if it is at all possible in this vein not the new one he found. What is happening now with the vein they can not repair. They can remove the ovary, but that is all they can do. Most of my liver is gone. He did find another vein, that is true, not as bad as this one, but it will eventually get there. But he also found this....
Arteriovenous fistula
An arteriovenous fistula is an abnormal channel between an artery and a vein.
Normally, blood flows from arteries into capillaries and then into veins. When an arteriovenous fistula is present, blood flows directly from an artery into a vein, bypassing the capillaries. A person may be born with an arteriovenous fistula (congenital fistula), or a fistula may develop after birth (acquired fistula). Congenital arteriovenous fistulas are uncommon.
If a large acquired arteriovenous fistula is not treated, a large volume of blood flows under high pressure from the artery into the vein network. Vein walls are not strong enough to withstand such high pressure, so the walls stretch and the veins enlarge and bulge (sometimes resembling varicose veins). In addition, blood flows more freely into the enlarged veins than it would if it continued its normal course through the arteries. As a result, blood pressure falls. To compensate for this fall in blood pressure, the heart pumps more forcefully and more rapidly, thus greatly increasing its output of blood. Eventually, the increased effort may strain the heart, causing heart failure. The larger the fistula, the more quickly heart failure can develop. All arteriovenous malformations (AVMs) are present at birth, but they are not always clinically evident.
If not treated, arteriovenous fistulas can be very dangerous. Tissues below the fistula may not get enough blood and may die. If too much blood is diverted through the fistula, heart complications may occur. Normally, blood flows from arteries into capillaries and then into veins. When an arteriovenous fistula is present, blood flows directly from an artery into a vein, bypassing the capillaries.
In essence my vascular system is shot.
So I am going back for more MRI's and tests to see if this can be treated/removed. This is why he has to be present when the ovary is removed. It is attached to the vein that is attached to my ovary. I swear Robin, I just feel like giving up, he gave us some hope, but no rope to hang on to. When he said to go and live my life he meant he was sorry that there was nothing they could do for me. This vein and the arteriovenous fistula could rupture at any time, next week, next year, 10 years etc. They just don't know. So on the 20th I go back for more tests and another MRI. All I have done is cry, I knew not to get my hopes up, but I did anyway. At least he can help with removing the ovary. I feel that is the most of my pain right now. I don't want Art to wake up one morning and me lay next to him gone. How HORRIBLE that would be for him!!!!! I am going to become a burden of ill health. I am going back to work next week. I am not going to lay around in this house and wait to die. For whatever time I have left (whatever that might be, hopefully years) I want to use it not waste it. I have a gr.daughter that I have not got to tell her that I love her. Dr. Said that flying is out of the question because of the pressure changes. But she will be coming here to visit in May.
My friend, my sister, I am sorry to dump this on you, but you are all that I have. My mom and son don't even know everything, they would be devastated. Art knows everything and he is beside himself. If you would, please post this for me on the forum. Tell them that I just did not have the heart to tell them what was going on after they prayed so hard and gave so much encouragement for us. And thank them for me. I feel like they have been let down. I wanted to tell them I just couldn't. If you don't want to that is okay to. I am keeping my chin up, that is all that I have left to do. Thank you my friend, we will get together soon....Theresa
Robin, my dear friend,
This is what is going on...I owe this to you. You and Karrel have been here for us since the beginning.
The vein can not be removed, is essence there is nothing that they can do for me. By patch and repair they mean if it is at all possible in this vein not the new one he found. What is happening now with the vein they can not repair. They can remove the ovary, but that is all they can do. Most of my liver is gone. He did find another vein, that is true, not as bad as this one, but it will eventually get there. But he also found this....
Arteriovenous fistula
An arteriovenous fistula is an abnormal channel between an artery and a vein.
Normally, blood flows from arteries into capillaries and then into veins. When an arteriovenous fistula is present, blood flows directly from an artery into a vein, bypassing the capillaries. A person may be born with an arteriovenous fistula (congenital fistula), or a fistula may develop after birth (acquired fistula). Congenital arteriovenous fistulas are uncommon.
If a large acquired arteriovenous fistula is not treated, a large volume of blood flows under high pressure from the artery into the vein network. Vein walls are not strong enough to withstand such high pressure, so the walls stretch and the veins enlarge and bulge (sometimes resembling varicose veins). In addition, blood flows more freely into the enlarged veins than it would if it continued its normal course through the arteries. As a result, blood pressure falls. To compensate for this fall in blood pressure, the heart pumps more forcefully and more rapidly, thus greatly increasing its output of blood. Eventually, the increased effort may strain the heart, causing heart failure. The larger the fistula, the more quickly heart failure can develop. All arteriovenous malformations (AVMs) are present at birth, but they are not always clinically evident.
If not treated, arteriovenous fistulas can be very dangerous. Tissues below the fistula may not get enough blood and may die. If too much blood is diverted through the fistula, heart complications may occur. Normally, blood flows from arteries into capillaries and then into veins. When an arteriovenous fistula is present, blood flows directly from an artery into a vein, bypassing the capillaries.
In essence my vascular system is shot.
So I am going back for more MRI's and tests to see if this can be treated/removed. This is why he has to be present when the ovary is removed. It is attached to the vein that is attached to my ovary. I swear Robin, I just feel like giving up, he gave us some hope, but no rope to hang on to. When he said to go and live my life he meant he was sorry that there was nothing they could do for me. This vein and the arteriovenous fistula could rupture at any time, next week, next year, 10 years etc. They just don't know. So on the 20th I go back for more tests and another MRI. All I have done is cry, I knew not to get my hopes up, but I did anyway. At least he can help with removing the ovary. I feel that is the most of my pain right now. I don't want Art to wake up one morning and me lay next to him gone. How HORRIBLE that would be for him!!!!! I am going to become a burden of ill health. I am going back to work next week. I am not going to lay around in this house and wait to die. For whatever time I have left (whatever that might be, hopefully years) I want to use it not waste it. I have a gr.daughter that I have not got to tell her that I love her. Dr. Said that flying is out of the question because of the pressure changes. But she will be coming here to visit in May.
My friend, my sister, I am sorry to dump this on you, but you are all that I have. My mom and son don't even know everything, they would be devastated. Art knows everything and he is beside himself. If you would, please post this for me on the forum. Tell them that I just did not have the heart to tell them what was going on after they prayed so hard and gave so much encouragement for us. And thank them for me. I feel like they have been let down. I wanted to tell them I just couldn't. If you don't want to that is okay to. I am keeping my chin up, that is all that I have left to do. Thank you my friend, we will get together soon....Theresa
